My thoughts on blogging...

I am going to really dedicate a little time to figuring out which blogging site I like best & try to make my blog more successful in the way I intended. Now it feels as though it's just pretty much another place for "ME" to vent, feel like I am just complaining but really just sharing my thoughts and how this disease is so demanding of all of me & my whole entire life. I would like the purpose of the blog to be informational & inspiring to anyone suffering or searching alike...so maybe I will keep this one to keep talking to myself! ;-) and start a second a little more structured...I have piles of websites, articles, info etc. to share. I can't wait til the day I can truly become a healthy advocate for this monster of disease so then I can truly shine through for others in need!!

A friend in need from this wretched disease!

http://www.gofundme.com/o0o9g

Another night ending with Insomnia

Man I won't miss it whenever it ends, real well rested sleep is something I have not seen in 8+years, especially past 4.... I recently bought melatonin natural sleep supplement and it actually helps some...but forgot to take early enough. Now I lay here paralyzed by the pain & stiffness eyes finally shutting hopefully more than 30 mins will go by b4 waking for 2nd time, sweet dreams to all, until next time. P.s.s I realized that my MAXIMUM time limit for staying asleep in one shot is 2 hours if I'm lucky! When I look at the clock and see exactly 2 hours gone by, do I ever feel blessed!

It's become a long week....

My week has had so many ups & downs, physically and emotionally.... I was blessed this week with a beautiful letter and a so much needed & appreciated gift from a dear friend who truly blesses me daily with the power of prayer & her wise words ;-) so my emotions & tears have been happy, sad or rather frustrated or probably both crying sessions, also from severe bouts of excruciating & unimaginable pain! Geez, the word excruciating comes up after 2 letters on the auto spell thing! I must use it ALOT!! I have found great support from a great group I have joined online- great & amazing people having to endure this horrific disease as well..... I have found so many resourceful links to share from diets to supplements & more. May be tomorrow since I am feeling so rough but I will get them here! Wondering which direction & which state to find the care & treatment I do desperately seek, & how much $$ it will cost. I feel it is the time to do whatever I need! Sick & tired of being Sick & tired!! I want to take control of my life back, this damn disease has taken 4 long years I can never get back!!

Interesting article-Part One

http://lymediseaseresource.com/wordpress/new-hope-for-most-severe-chronic-cases-of-lyme-disease-part-one/

Science Daily Article

Mystery of bacterial growth and resistance solved: Findings shed light on how bacteria form protective biofilms

Sleepy Today

Not such a great day thus far, very hard getting up. Symptoms are tenfold from my head to my toes , except I'm very grateful I am still here : ) and will be able to watch my son play baseball tonight. Hopefully it doesn't prevent me from getting there, he is supposed to pitch tonight so very excited we both are. He did hurt his foot yesterday in practice, a very heavy weight was dropped on his foot & I think he is trying to be more tough about it than he really should so.... I will pray for his foot to heal and a fun & safe game for all tonight!!! The enormous hawks around my house visited this morning like most, trying to look for my cozi bear puppy! I almost think one was waiting out there today, as soon as I brought her in there it was circling over me.... I am waiting in so hopefully very good useful information on some treatments and doctors info from a group I participate in....so for now have a wonderful day and will try to work from my computer later rather than the phone to share some info on here. Also give my fingers/hands a break! :-)