My thoughts on blogging...

I am going to really dedicate a little time to figuring out which blogging site I like best & try to make my blog more successful in the way I intended. Now it feels as though it's just pretty much another place for "ME" to vent, feel like I am just complaining but really just sharing my thoughts and how this disease is so demanding of all of me & my whole entire life. I would like the purpose of the blog to be informational & inspiring to anyone suffering or searching alike...so maybe I will keep this one to keep talking to myself! ;-) and start a second a little more structured...I have piles of websites, articles, info etc. to share. I can't wait til the day I can truly become a healthy advocate for this monster of disease so then I can truly shine through for others in need!!

A friend in need from this wretched disease!

http://www.gofundme.com/o0o9g

Another night ending with Insomnia

Man I won't miss it whenever it ends, real well rested sleep is something I have not seen in 8+years, especially past 4.... I recently bought melatonin natural sleep supplement and it actually helps some...but forgot to take early enough. Now I lay here paralyzed by the pain & stiffness eyes finally shutting hopefully more than 30 mins will go by b4 waking for 2nd time, sweet dreams to all, until next time. P.s.s I realized that my MAXIMUM time limit for staying asleep in one shot is 2 hours if I'm lucky! When I look at the clock and see exactly 2 hours gone by, do I ever feel blessed!

It's become a long week....

My week has had so many ups & downs, physically and emotionally.... I was blessed this week with a beautiful letter and a so much needed & appreciated gift from a dear friend who truly blesses me daily with the power of prayer & her wise words ;-) so my emotions & tears have been happy, sad or rather frustrated or probably both crying sessions, also from severe bouts of excruciating & unimaginable pain! Geez, the word excruciating comes up after 2 letters on the auto spell thing! I must use it ALOT!! I have found great support from a great group I have joined online- great & amazing people having to endure this horrific disease as well..... I have found so many resourceful links to share from diets to supplements & more. May be tomorrow since I am feeling so rough but I will get them here! Wondering which direction & which state to find the care & treatment I do desperately seek, & how much $$ it will cost. I feel it is the time to do whatever I need! Sick & tired of being Sick & tired!! I want to take control of my life back, this damn disease has taken 4 long years I can never get back!!