Interesting article-Part One

http://lymediseaseresource.com/wordpress/new-hope-for-most-severe-chronic-cases-of-lyme-disease-part-one/

Science Daily Article

Mystery of bacterial growth and resistance solved: Findings shed light on how bacteria form protective biofilms

Sleepy Today

Not such a great day thus far, very hard getting up. Symptoms are tenfold from my head to my toes , except I'm very grateful I am still here : ) and will be able to watch my son play baseball tonight. Hopefully it doesn't prevent me from getting there, he is supposed to pitch tonight so very excited we both are. He did hurt his foot yesterday in practice, a very heavy weight was dropped on his foot & I think he is trying to be more tough about it than he really should so.... I will pray for his foot to heal and a fun & safe game for all tonight!!! The enormous hawks around my house visited this morning like most, trying to look for my cozi bear puppy! I almost think one was waiting out there today, as soon as I brought her in there it was circling over me.... I am waiting in so hopefully very good useful information on some treatments and doctors info from a group I participate in....so for now have a wonderful day and will try to work from my computer later rather than the phone to share some info on here. Also give my fingers/hands a break! :-)

So Thankful the sun is shining again today!!

I am so happy it is going to be another sunny day here, it has so much healing power for me, i have to literally bask in it and soak in as much as i can!! I hope it sticks around!! I just want to say 1st how truly grateful I am for certain people who have by chance (well reason) come into my life in the past couple years~ a true blessing : ) I truly believe that god gives us the people we need in our lives, there is a saying/ quote I will look up & share which pertains to just that, which I love!! I woke up to read a very wonderful email first thing this morning, from a dear friend which brought tears of happiness & comfort to my eyes. God bless her, she is truly an amazing soul! I am so blessed god has brought her into my life, and blesses me with her inspiring words of wisdom & comfort. I woke up today at 5:30 am! The first time I have been able to get up before 11-12 in weeks!! And after going to sleep with the most horrific headache imaginable with nothing relieving it, i did not forsee that happening, well it's gone as well for the time being. I am very thankful for that. I am going to do some revising of the blog to figure out how to make the layout more suitable to the style I'm looking to give it and more user-friendly. I have many great articles & links etc...I want to share here, so I will spend some time here today working on this. Thank you god, for today & all I am blessed with, and thank you to all who take the time to read my thoughts. One important thing I want to share is a meeting this Saturday in Duluth MN, starting at 10am on people With "MS" who live in Lyme Endemic areas. I will post the details shortly, as the link section of this blog is one I am going to focus on revising. Talk to you again soon....

It's tuesday! I am still alive :-)

Well another yucky night last night leaving me to sleep for 12 hours feeling as though I slept for one. I get severe swelling in my brain, feeling of numbness and tingling, cracking of my neck and base of skull- internally felt! It feels like my neck is becoming disconnected from back of my head. Ya, it's about as weird of a feeling as it sounds! I wanted to share my thoughts on the "MS MOMENTUM"joke of a publications I receive , once in a while there are a couple interesting articles leaning more towards the outside looking in than inside looking out like this one. The whole thing is filled with dates of "free events" which mind you, are sponsored by either 2 big pharmaceutical companies or the very 3 "top" neurology clinics I went too! Oh and if you read yesterday's which briefly said how wonderful(kidding) one doc was who left me to literally die while on one of the "MS Therapies" he is always featured in the publications as a speaker and leading "MS" expert. Hmmm, well in my experience with him he seemed almost too good to be true nice, at my 1st appt with him than acted like he had never met me after he got the credit for starting me on the medication! I was another statistic to him, he also told me if this medication did not work for me he would have no idea what to do and would probably have to refer me to his partner who dealt with difficult to treat people & there was not much hope for me if this happened. He is entitled to call himself an expert!? Really, I don't get this, because he does what the Government ran medical associations, we rely on and the pharmecutical companies want, he is an expert!! The only expert I have become to rely on through all of this is MYSELF! And don't question any of their advice or you will be treated even worse, and you can almost always guarantee on a repetitive report on how depressed and angry you are and they have referred you to a psychiatrist!! Ha, it's such a joke. I don't wish anyone to go through this garbage, and pray for the health of everyone single person because it is a battle of self worth and reliance as much as disease.

A day of many thoughts

My over active brain has been doing circles more so than usual, I dont even know how that is possible! It is definitely not doing my health any favors but I started this blog about a month ago, hoping it to be a place to share my thoughts on where life has brought me. I didn't stay active with it like i intended, but realize to accomplish what is important I must try my best to stay on top of it. I have found so much info in the past month on my illness of chronic Lyme disease its almost seems absurd. It a seemingly endless ocean of information, good but sad for fellow fighter's! Truly devastates me that we live in a world & country of so many opportunities yet it's our very own country preventing those suffering with this debilitating disease from proper healthcare and treatment and life. A government taken over by pharmaceutical big wigs neglecting its very own people being held to answer to them!? I don't get it! There is research centuries back regarding Lyme bacteria Borrelia_burgdorferi it has been proven that knowledge of its existence and the treatment of this bacteria, along with other very serious co-infections has been covered up by our nations finest, all who we are believed to trust, it's a heinous act on human kind that this disease is allowably killing so many people because we are denied treatment and "chronic Lyme" does not exist!? Well I'm telling you it does! Im living proof, hopefully by the grace of god, I stay that way. Tell me this, if a bacteria infection goes untreated what in the world would it be called than if not chronic!!!?? How will it go away without treatment? We have doctors who have risked their very beings & educate themselves in this disease called "LLMD" Lyme Literate medical doctor's who are being reprimanded for treating and helping patients like me who are literally DYING from every fiber of their being. My initial dx was Multiple Sclerosis which has been presented to this world as a pretty terrible disease along with many others i will mention another time but in fact in my opinion it is a condition not in fact a disease. If you take the definition of the two words they are actually quite self explanatory- MULTIPLE- meaning "many" & SCLEROSIS- meaning "scarring" of a tissue or cell or part so now why is that defined as a disease? Because people are misinformed, unware and really with the multiple MS Societies and chapters & EXPERTS IN MS there is no cure, but billions of dollars are continued to be raised for this "condition". Hypocritical doctors, the very ones we look to for help and trust are able to label themselves experts in MS-why? Because they have a "special interest" in "MS" or is it the $$$ they receive to be a part of a crooked society of people profiting from endless drugs made to relieve symptoms but not heal or find a "cure"!? There is not and never will be a cure because it is a condition caused by an underlying infection knowingly being left untreated. I have no gain for sharing my opinion except the mere fact that I am one of those left to die from a so called non curable disease that doesn't exist! But in fact I do have Chronic Lyme disease which does exist & has become so severely neurological and arthritic and myalgic and I need antibiotic treatment& proper care which I cant use my ins 4 & it's going to kill me if something doesn't change. So tell me now, why is a LLMD Just that but not able to label themselves as an expert in the field of study they specialize in, when they are the ones successfully treating people, who are being chewed up and spit out over and over again with a chronic infection by your very own doctors. Dr.s who in my opinion. and in the opinion of tens of thousands of others are saving people's lives & have to keep a low profile in order to keep treating and unable to accept insurance because the insurance companies are on the same page as those covering up what an endemic disease Lyme is and don't want to cover the long term treatment many need, but in fact will cover a Tysabri infusion for MS that cost a few thousand a month that has once been taken off the market because it caused fatal brain infections l. Tiis was my last straw on there MS roller coaster, as my body literally started shutting down the first time, I had never been more terrified. I had one if those supposed top leading MS experts who was supposed to be personally monitoring me for any serious side effects! What a joke that was, he made his nurse deal with my every day phone calls that took 1-2 weeks to get a response back from her. I begged for him to call me back and he refused, told me to continue taking this Poison and he would see me in 3 months!!! Through all of this, it is the treatment of antibiotics which has been proven to make my symptoms improve tremendously while on them each time. If they are helping thousands who have been completely disabled, bound to a wheelchair & no quality of life , with thanks to our mainstream political medical community. Why are countless improvements of human life while be properly treated and cared for not proven effective!? Why is this ok?? The IDSA & CDC & doctors I'm told to see are not doing anything but depriving me of my god given right to life! I want MY LIFE BACK! I don't want to die....I am 32 freaking years old!! Dealing with this political circus for almost FOUR YEARS!!!!!