It's tuesday! I am still alive :-)

Well another yucky night last night leaving me to sleep for 12 hours feeling as though I slept for one. I get severe swelling in my brain, feeling of numbness and tingling, cracking of my neck and base of skull- internally felt! It feels like my neck is becoming disconnected from back of my head. Ya, it's about as weird of a feeling as it sounds! I wanted to share my thoughts on the "MS MOMENTUM"joke of a publications I receive , once in a while there are a couple interesting articles leaning more towards the outside looking in than inside looking out like this one. The whole thing is filled with dates of "free events" which mind you, are sponsored by either 2 big pharmaceutical companies or the very 3 "top" neurology clinics I went too! Oh and if you read yesterday's which briefly said how wonderful(kidding) one doc was who left me to literally die while on one of the "MS Therapies" he is always featured in the publications as a speaker and leading "MS" expert. Hmmm, well in my experience with him he seemed almost too good to be true nice, at my 1st appt with him than acted like he had never met me after he got the credit for starting me on the medication! I was another statistic to him, he also told me if this medication did not work for me he would have no idea what to do and would probably have to refer me to his partner who dealt with difficult to treat people & there was not much hope for me if this happened. He is entitled to call himself an expert!? Really, I don't get this, because he does what the Government ran medical associations, we rely on and the pharmecutical companies want, he is an expert!! The only expert I have become to rely on through all of this is MYSELF! And don't question any of their advice or you will be treated even worse, and you can almost always guarantee on a repetitive report on how depressed and angry you are and they have referred you to a psychiatrist!! Ha, it's such a joke. I don't wish anyone to go through this garbage, and pray for the health of everyone single person because it is a battle of self worth and reliance as much as disease.