My over active brain has been doing circles more so than usual, I dont even know how that is possible! It is definitely not doing my health any favors but I started this blog about a month ago, hoping it to be a place to share my thoughts on where life has brought me. I didn't stay active with it like i intended, but realize to accomplish what is important I must try my best to stay on top of it. I have found so much info in the past month on my illness of chronic Lyme disease its almost seems absurd. It a seemingly endless ocean of information, good but sad for fellow fighter's! Truly devastates me that we live in a world & country of so many opportunities yet it's our very own country preventing those suffering with this debilitating disease from proper healthcare and treatment and life. A government taken over by pharmaceutical big wigs neglecting its very own people being held to answer to them!? I don't get it! There is research centuries back regarding Lyme bacteria Borrelia_burgdorferi it has been proven that knowledge of its existence and the treatment of this bacteria, along with other very serious co-infections has been covered up by our nations finest, all who we are believed to trust, it's a heinous act on human kind that this disease is allowably killing so many people because we are denied treatment and "chronic Lyme" does not exist!? Well I'm telling you it does! Im living proof, hopefully by the grace of god, I stay that way. Tell me this, if a bacteria infection goes untreated what in the world would it be called than if not chronic!!!?? How will it go away without treatment? We have doctors who have risked their very beings & educate themselves in this disease called "LLMD" Lyme Literate medical doctor's who are being reprimanded for treating and helping patients like me who are literally DYING from every fiber of their being. My initial dx was Multiple Sclerosis which has been presented to this world as a pretty terrible disease along with many others i will mention another time but in fact in my opinion it is a condition not in fact a disease. If you take the definition of the two words they are actually quite self explanatory- MULTIPLE- meaning "many" & SCLEROSIS- meaning "scarring" of a tissue or cell or part so now why is that defined as a disease? Because people are misinformed, unware and really with the multiple MS Societies and chapters & EXPERTS IN MS there is no cure, but billions of dollars are continued to be raised for this "condition". Hypocritical doctors, the very ones we look to for help and trust are able to label themselves experts in MS-why? Because they have a "special interest" in "MS" or is it the $$$ they receive to be a part of a crooked society of people profiting from endless drugs made to relieve symptoms but not heal or find a "cure"!? There is not and never will be a cure because it is a condition caused by an underlying infection knowingly being left untreated. I have no gain for sharing my opinion except the mere fact that I am one of those left to die from a so called non curable disease that doesn't exist! But in fact I do have Chronic Lyme disease which does exist & has become so severely neurological and arthritic and myalgic and I need antibiotic treatment& proper care which I cant use my ins 4 & it's going to kill me if something doesn't change. So tell me now, why is a LLMD Just that but not able to label themselves as an expert in the field of study they specialize in, when they are the ones successfully treating people, who are being chewed up and spit out over and over again with a chronic infection by your very own doctors. Dr.s who in my opinion. and in the opinion of tens of thousands of others are saving people's lives & have to keep a low profile in order to keep treating and unable to accept insurance because the insurance companies are on the same page as those covering up what an endemic disease Lyme is and don't want to cover the long term treatment many need, but in fact will cover a Tysabri infusion for MS that cost a few thousand a month that has once been taken off the market because it caused fatal brain infections l. Tiis was my last straw on there MS roller coaster, as my body literally started shutting down the first time, I had never been more terrified. I had one if those supposed top leading MS experts who was supposed to be personally monitoring me for any serious side effects! What a joke that was, he made his nurse deal with my every day phone calls that took 1-2 weeks to get a response back from her. I begged for him to call me back and he refused, told me to continue taking this Poison and he would see me in 3 months!!! Through all of this, it is the treatment of antibiotics which has been proven to make my symptoms improve tremendously while on them each time. If they are helping thousands who have been completely disabled, bound to a wheelchair & no quality of life , with thanks to our mainstream political medical community. Why are countless improvements of human life while be properly treated and cared for not proven effective!? Why is this ok?? The IDSA & CDC & doctors I'm told to see are not doing anything but depriving me of my god given right to life! I want MY LIFE BACK! I don't want to die....I am 32 freaking years old!! Dealing with this political circus for almost FOUR YEARS!!!!!
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